Tag Archives: Disease

Lance Armstrong, Cycling, Etc

“Does Lance Armstrong enjoy cycling? Of course he does! He has a ball!”

I saw this one today, written by Kuruis, on Reddit Jokes, got a laugh, wanted to pass it along, so here it is…lol

I am lurking the web, newspapers, movies, and documentaries mining for material to go into my next blog entry. The jokes help keep things into perspective. Sometimes, I try too hard to come up with an entry, and write a bunch of crap, or nothing at all.

Thanks to everyone who has, and is still supporting me in this time of difficult transition, in my life. Having Crohns Disease, and all the body falling apart problems 28 years of it entails is a harsh reality, in and of itself. Adding the marriage breakup to the mix, makes for some real crappy days. Thanks to all of you for cruising my blog, and sending the well wishes.

This too shall pass.

Cheers,

mark – aka still need a car to get back and forth to doctors’ appointments – armyveteran ūüėČ

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Filed under Blogging, Crohns Disease, Humor, Life as a Disabled Veteran, Personal, Sports

Could Thalidomide Be The Answer For My Crohns Disease?

As I was doing research on treatments for Crohns Disease, I ran across some interesting research where Clinicians are using Thalidomide to treat Crohns Disease patients unresponsive to other treatments. In several studies, even the patients who dropped out of the clinical trials because of side effects, ranging from drowsiness, neuropathy, and constipation, had positive results from the use of this drug, on their disease. The positive effects on Crohns disease were prevalent even in lower doses, with some patients attaining total remission

Thalidomide was banned in the mid part of last century due to severe birth defects, so it would have to be carefully monitored as to who would be able to use it, if approved, and accepted by the Medical Community, for widespread use; nonetheless, for people like me who have had a bad reaction to everything except steroids, to treat my Crohns disease, this may be an alternative I may be able to take. I will be asking my GI doctor. This drug is an earlier version of the new main line Crohns disease treatments, Anti Tumor Necrosis Factor (anti TNF) drugs. I will definitely investigate this.

My GI doctors want me off the steroids, and I fully understand why, but we have not found an alternative yet. We thought we had an alternative, but when I got the prescription, and checked it against my records, I saw where it caused me a significant GI bleed. I was throwing up dry blood from it several years ago, so I cannot use it. Maybe low dose Thalidomide will work, or maybe not. I will keep looking though. Lucky for me, my GI Clinic is affiliated with the University of Florida, and Shands Gainesville, so I get access to treatments before others, if I choose to participate, in clinical trials.

Thanks for stopping by. I still need a car if ANYONE can help me out with a clunker. I would be happy to make payments. I just do not have a down payment. I am planning to move closer to the hospital, but will need a car so I am not stuck, in a new town, with no way to go. I guess we can say getting a car is on my “Bucket List“. I really, really, really need one, and hate to ask, but at this point I am about ready to beg.

Take Care,

mark

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Filed under Blogging, Crohns Disease, Health, Life as a Disabled Veteran, Personal, Veterans Issues

Another Flare of Crohns & Pancreatitis – This Is Crazy

Today is not such a good day. I woke up in the middle of the night, at the end of my first sleep, with incredible pain, in my abdomen. I took medications prescribed for this, to alleviate, and mitigate the problems causing the pain, but all it did was keep it from getting worse. I never got back into the rhythm of my second sleep, and I was looking forward to it.

My Crohns is flaring up, along with my pancreas. It is inflamed, again, so on top of a Crohns flare, I have pancreatitis. It is not bad enough yet, to go to the hospital, and I hope it does not get that bad. I was planning on getting the money to pay my rent here, but they will just have to understand that I cannot function, in society, when I am having these types of problems. This would not be a problem if I got paid for writing about it. ūüėČ Being able to write at all is a good sign I may be able to¬†stay out of the hospital.

I am truly surprised the stress of everything I am going through has not done me in, health wise, already. I am grateful it has not. I have bunches of stuff to do. Finish unpacking, get money for rent, go food shopping, change address with all the companies I do business with. However, I am taking it easy, not eating anything, and pushing the Gatorade, in the hopes I will snap out of this today, hopefully this afternoon.

Someone made a comment they do not understand why I write about such personal things in my blog. I do this because I want other people, in circumstances similar to mine,  to know they are not alone. I also write about the problems I confront as a disabled veteran, a person with crohns, and other health problems because it is therapeutic for me to do so. I am not going to apologise for writing about the problems I have. They are very real, and very hard to deal with. I am always broke because my disability check is not very much, not even for one person. Since I have limited means, I have to get out of myself somehow, hence this blog. In the 25 years I have struggled with illness, I have never had a major collection taken up to help me defray the costs I incur. On a couple of very rare occasions I have had someone give me a few bucks. I am not a beggar, but even if I were, people would make a snap decision, and not give me a penny. This blog is my tool for good mental hygiene, and to educate others about the struggles the walking wounded go through.

As for the people who say this blog is hard to read. Do not jump to conclusions when reading my home page that all I do is talk about Crohns Disease, neuropathy, Chronic Multifactorial Pain Syndrome, Permanent Scarring, Arthritis, osteoporosis, rheumatoid arthritis, bone mineral loss, loss of bone mass, spondylosis of the back, bulging/herniated discs, nerve damage, chronic blood loss w/ iron deficient anemia, requiring at a minimum, monthly iron infusions, and even more problems than I can remember, or even care to list.

Please look through my blog, and you will see  I cover many different topics, including, but not limited to, Art, Black History, Civil War, Creative Writing, Crime, Humor, Local Florida News, Nature, Poetry, Political, Spiritual, Sports, Veterans Issues, and Weather.

Thanks to all who stop by, and read my blog. Thanks to all who pray for me. I really need extra prayers, at this time of high stress, in my life. I am doing my best to stay out of the hospital, and your prayers, and well wishes do a whole lot to lift me up.

Cheers!

mark

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Filed under Blogging, Crohns Disease, Life as a Disabled Veteran, Personal